Attempting to Reverse Inversion

Me in Suicide Silence HoodyMy name is Beau Everette. I am in my early 30’s.

I am a proud father and have a beautiful wife.

I also have a severe case of Multiple Sclerosis and Chronic Pain. I have suffered from the Chronic Pain for over 9 years, I have had to endure the MS for what my doctors believe to be a lot longer.

As far as the MS goes, I have been on three different medicines at separate times. I have been on Copaxone, Rebif, and am now taking monthly infusions of Tysabri. Expect to hear me complaining about how bad I feel a couple days prior to my infusions every month.

As far as the Chronic Pain goes, I have been on almost every pain medicine you can think of. Pills, nerve injections, acupuncture, a chiropractor and therapists. I once had a doctor prescribe me Methadone, Morphine and Percocet,  all at the same time. I was seriously made into a zombie.

For the record I hate pills, I hate drugs in general.

But as far as why I am creating a blog instead of just pouring my thoughts out onto Facebook.

  1. I want to write about how I feel daily or at least as often as possible. I think if I write about how I feel it will give me some kind of release. My MS is crippling my hands so I can no longer play video games, which before was my one true way to take my mind off of my pain. Now I can no longer use a mouse & keyboard to play because my hands freeze up, go stiff, and hurt extremely bad. I can no longer use a game controller either because it hurts to stay in a cramped position for any length of time. So now I hope to write, read, listen to music and look at art and videos that make me happy.
  2. I want to look at other blogs and communicate with other bloggers that share my problems. In doing so I will report what I find in hopes that I can help the community.
  3. I hope to shed some light on some well deserved, yet very underground artists and musicians. In doing so I will post a picture or two of an artist’s, or a musician’s music video along with a few words on how I feel about them. I will also post links to their pages where you can find more of their work.
  4. Last but not least. In making this blog even if no one else reads it, it will allow me to break a anxiety barrier that having such a painful life and not being able to leave the house much to socialize has created. Therefore attempting to reverse inversion.
You can get a hold of me either by leaving a comment, facebook or gmail.
Facebookbeaueverette@gmail.com
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Comments
  1. Agreed! Blogging is a great way to express and work through stuff without feeling like you’re loading down your loved ones (again). Keep it up, I’m nosy about how others cope with the ups and downs of this stupid disease. I maybe start Gilenya sometime next month when the insurance people figure it out. Beta, Rebif and Copax didn’t do much, but they’re a heck of a ride! Be well~

    • I would be very interested in how you do with the Gilenya. Not that I have a problem with the Tysabri, it’s just that in order to receive the medicine my wife has to drive me an hour away to another city, then wait 2-3 hours for the procedure, then drive me back home. I take so many pills that I wouldn’t be concerned with taking another one. My disability check and her student loans are barely enough to cover the costs of all the gas to get to the doctors, and Medicaid and Medicare does not cover that.

      • I will let you know what happens. The insurance carrier is making it go very slow so it is hard to tell what will happen when. It probably happened to you with T too.

        I’m glad T is working out for you so far, but yes, it sounds like a huge burden to get that infusion.

      • Ahh, insurance, making you overpay then taking it’s time to do anything. Hopefully things start to sail smoothly for you soon though.

        Really, the Tysabri infusions aren’t that much of a burden. I would actually prefer it if I could just stay home and have a nurse come out to my house. That’s wishful thinking I know, so I will just keep continuing doing what I’m doing.

  2. mickcgorman says:

    Perfect use of a blog, if you ask me. I use mine mainly to unload the things that get me down, that way I don’t have to burden my family. I look forward to reading more. 🙂

  3. While my medical issues are different to your own the isolation of chronic illness is something I very much identify with. Starting a blog has proven to be one of the best decisions I’ve made in a long time. I hope you find the same.

  4. quiall says:

    Wow. My course of MS is so vitality different from yours. I admire your strength! I may be bound to a wheelchair but I have no pain. I wait with anticipation for your next blog submission.

    • Thanks. I am happy you have no pain. I think I could do a lot more if my pain was just on a normal level. I will either post another blog tonite or definitely tomorrow. I have had a pretty decent weekend. Friday I slept all day, Saturday I was with good friend of mine, today is Father’s day so I am going to be with my daughter. I have a lot of ideas for good blogs that relate to my MS though coming up.

  5. Greg Smith says:

    Hey cuz,
    I think this is good for you. It really sucks you can’t do the things you used to, to help you forget about the pain for a while. I can tell you I will be a constant follower and sometimes contribute or comment. I love you and I hope one day they will fi d a cure for this wretched disease.

    • Thanks cuz.
      A lot of the things that make me happy are slowly being taken away from me but I still have some of the best family and friends that I could ask for, and really as long as anyone has that they are good to go.

  6. Judy says:

    Good luck with your blog … and especially with your health.

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